"On Thursday it will be known how the government investigators thought of the terms for personal assistance in the future. Among the stakeholders, there has long been a pronounced mistrust."
"– the Mood is despondent, " says Michael Klein at the Funktionsrätt Sweden."
"the controversy around the investigation have been many: the replacement of the investigators, the draft which was leaked, election promises and not much time remained – the government's u-turn. Requirements sparförslag was taken away in the eleventh hour."
"when the government is in the early summer of 2016, decided to carry out the act concerning support and service to some disabled (LSS), including the right to personal assistance, where the mission to propose the savings. The government described the increased costs for assistansersättningen "
"Before the inquiry was appointed, the government had already asked the Insurance office to try to break the cost trend for the state assistansersättningen. This meant a stricter application of the rules, among other things, it was harder to get assistanshjälp with tube feeding."
"– It has become tougher for both children and adults to receive personal assistance. The development has been going on for a long time but escalated at a pace I didn't think were possible. I hear more and more parents who say they can't take it anymore but need to apply for a place on the accommodation for their child. I have no words for how terrible I think it is, " says Maria Persdotter, president of the Disabled children and young people (RBU)."
"That the government eventually pulled the brakes to mitigate the effects of the new enforcement, was not the scepticism among the stakeholders. Instead accelerated the upset when the materials from the investigation leaked out in the beginning of 2018. In the draft proposed, inter alia, that children under twelve years shall no longer be entitled to personal assistance but receive other forms of support."
"the Investigator Gunilla Malmborg assurance that they will not submit proposals that involve impairments had little sedative effect. Neither had the government's new notice in may 2018, that the investigation is not to propose savings."
"– When the government finally backed away from the besparingskraven we thought ”great, when will the investigation not to suggest that personal assistance for children to be withdrawn"
"Funktionsrätt Sweden want the whole report thrown in the trash. The organization predicts that not only children but also people with very extensive support needs and people with mental disabilities suffer, if they were expecting the proposals for personal assistance are carried out."
"– But there has been a substantial dismantling of all LSS efforts of the past few years. For example, it is difficult to get the particular accommodation and guiding. People are desperate because they cannot get life to go together. But rather than correct this the study will suggest further deterioration. There will be an outcry, " says Michael Klein."
"LSS stands for the act concerning support and service for certain disabled people. It was introduced in 1994."
"It includes ten different types of assistance, including personal assistance, is a. Other types of support are escort service, avlösarservice in the home and housing with special service."
"Personal assistance can be given to those who have a comprehensive and long-term disabilities."
"the Assistants will help the person (child or adult) with basic needs, like eating, dressing and maintaining hygiene. It is also possible to get assistance to move and participate in different activities."
"the Municipality shall be for the personal assistance for those with less than 20 hours a week."
"The state compensation is for those with the greatest needs – those who need more than 20 hours of assistance a week."
"The total number of persons granted assistance, in the end of last year, about 19 400. Approximately 4,900 of these had received assistance granted by its municipality."
"the Number of granted assistance has dropped overall in recent years. Although the number of granted assistance of their municipality increased slightly, but at the same time, the number of state workers declined by about 1 600."
"the Number of the state carer's allowance:"
"November 2018: 14 531 persons"
"December 2017: 14 886"
"December 2016: 15 691"
"December 2015: 16 142"
"December 2014: 16 158"
"the Decrease is mainly explained by the lower compensation is granted."
"the Years 1994-2014 by contrast, the number of eligible, from 6 141 16 158. The increase is partly due to changes in the law made that more groups had the opportunity to personal assistance. It, including those over the age of 65 years, who have been given the right to retain the assistance which they had in the past."
"the Number of granted veckotimmar has increased throughout the period, from less than 70 hours per person in 1994 was 128.5 hours in 2017."
"Source: the social Insurance and assistanskoll.see"
"the State cost is assessed to land on to 25.3 billion in 2018, and 24.7 billion in 2019."
"Assistansersättningen costs total 2017-roughly the same amount as the child allowance (27,3 billion), but less than sjukersättningen (38.8 billion) of earnings (sek 36.2 billion) and the amount of the allowance (eur 33.6 billion)."
"Sources: the social Insurance and assistanskoll.see"
"2016: social Insurance, invited by the government to help break the cost trend for the state assistansersättningen."
"Insurance will become more stringent in their enforcement, with support from previous judgments of the Supreme administrative court. This means, among other things, that tube feeding is not seen as a basic need that provides the right to assistance."
"May 2016: the Government appoints the LSS inquiry, with the mandate to propose savings in the assistansersättningen. This directive recognises that the costs increased by sek 16 billion in ten years."
"Juliu002Faugusti 2017: Investigator, member of parliament, Desirée Pethreus (KD), ask to stop. To the new investigator is appointed Gunilla Malmborg."
"October 2017: the social Insurance office warns that thousands of people with personal assistance can get fewer stödtimmar after a new ruling of the Supreme administrative court."
"November 2017: the Government presents a package of measures with the aim to mitigate the effects of past indicative judgments. Means, among other things, the freezing of the re-evaluations of the right to assistance that is normally done every two years. The application of assistenters waiting, and readiness is restored."
"December 2017: the national Board of health reports that children in a higher degree than adults adversely affected by the Agency's more stringent application of the rules."
"December 2017: the social Insurance office reports that a sharply growing percentage of applications are rejected on application for state assistance."
"February, 2018: Draft suggestions delicious. According to the work material, which are referenced in the media, disabled children under twelve years old no longer get the personal assistance without other forms of support."
"March 2018: Lena Hallengren (S) succeeds Åsa Regnér (S) as the minister responsible for including the rights of persons with disabilities."
"April, 2018: the Supreme administrative court concludes that tube feeding can provide the right to assistance."
"May 2018: The Investigation may amended directive: Savings no longer need to be proposed."
"October 2018: The New draft suggestions delicious. The investigation is, among other things, propose a flat rate for all with the assistance of 15 hours a week, in addition to the time to get help with basic needs."
"December 2018: the Transitional government promises change in the law which makes clear that help with breathing and tube-feeding must be counted as basic needs in the assessment of personal assistance."
"January 10, 2019: the Report submitted to the government Lena Hallengren."