again and again, don't be flat at the end of mothers in front of this Situation: The belly to feel the child's movements yet, and yet, you have to ask how it goes for now. Now that you know that your child has Down syndrome.
With the ever-cheaper and perhaps soon by the health insurance company paid for blood tests to get parents already at an early stage, a reliable diagnosis of trisomy 21 Chromosomal abnormality. Far less reliable are forecasts about what the test result means, in concrete terms, and practical. What are the chances that the child is prepared for once to be alone for a dinner, a birthday card writes that it later falls in love with happy?
the Right or the fork to eat
To parents, at least some of the benchmarks, on the Hand, have questioned the doctors from the United States and the Netherlands, more than 2600 families in both countries. It is the largest survey of this type, write the authors, Brian Skotko of Harvard Medical School in Boston. In the magazine "American Journal of Medical Genetics" published the results confirm that children with the chromosomal disorder are especially in need of a lot of time for their development.
a third of American families reported that their offspring could not walk at the age of two to three years. Some of the Small learned in the primary school age, to eat with the fork. However, these difficulties grew in almost all complete.
The biggest difficulties of transport – as well as the partner prepared.
Until the end of the 30. Year of life, when the development was complete, we were able to talk in addition, almost 80 percent of the young people to understand and independently to your body hygiene care. 70 percent were able to work. Almost every Second person was able to read, write, and prepare meals.
The biggest difficulties the young people had, if you wanted to use a form of transport, as well as the life partner. A maximum of 30 percent to cope in these areas alone. But at least a third of the American respondents managed to live more or less independently of the parents. The Dutch families described Similar.
Overall, varied the expression of the skills. Some parents reported that the son or daughter learned some life skills. Reasons for this could be insufficient promotion, but also physical problems, or differences in the intelligence, write the physicians.
most do not find a job
full data are reliable, however. The information provided by the parents were not verified objectively. So it is quite possible for you to assess the skills of your children being a little optimistic. So, it is not clear how and to what extent the young people's work. However, other US studies have shown that the majority of people with Down syndrome had a Job, though many in part-time. Most often they worked in the hospitality, landscaping, offices or as a janitor. That the parents were not randomly selected and representative, complicates the generalization.
Nevertheless, the work allows for a look at how parents evaluate their Situation and that of their children. In this context it is interesting what some of the researchers involved have already found out years ago. They had asked people with Down's syndrome: Are you happy? Do you like yourself? Do you like your own appearance? You Love Your Family? On all questions a minimum of 96 percent responded "Yes".
Created: 07.01.2019, 21:00 clock