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She is still but a shadow of itself: the mother can by rare anomaly own bodies hear work

Medical A British family has a fundraising campaign on its feet in the hope mother, Pam Roberts (49) to redeem from a rare condition. That makes the woman her o

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She is still but a shadow of itself: the mother can by rare anomaly own bodies hear work
Medical A British family has a fundraising campaign on its feet in the hope mother, Pam Roberts (49) to redeem from a rare condition. That makes the woman her own organs can be heard working and have no way to escape that “deafening sound”.

Superior semicircular canal dehiscence (SSCD) is called the disease, and there is even not an official Dutch name for. It is caused by an opening in the bone that the upper semicircular canal of the vestibular system are covered. Patients often suffer from balance disorders and can hear what their body is playing.

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That is exactly what the mother from Maidstone – south east London – should. “They hear all the time her heart beat, the work of her stomach and intestines, the movement of her eyeballs, her footsteps, her own voice echoes in her head and her breathing,” says her partner Martyn Smith (41), with whom she has two children: Bethany (6) and Bobby (2). “She also feels dizzy, as if the entire world turns.” the


The woman received the diagnosis in 2015, as most of the patients when they are in their forties. They had the condition endure while she was pregnant with her youngest daughter and now her children grow up. And that is not easy. “The girls play a lot and then there is sometimes called – that children now once – but that is very painful for me,” she says in the British media. “Bethany understands the meanwhile, and sometimes says to other kids that they are not allowed to scream, because her mama that don't like it. I think it's at the same time, however, they are so mean to me.” (read on below)

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