Bass (12) and Pim (10) have such a rare syndrome that government, nothing to pay back They think that our sons are healthy. That hurts so much

Tessenderlo Bass (12) and Pim (10) Verheyden from Oostham are suffering from an extremely rare mutation of the IPEX syndrome. So rare, that the government the disease is not serious. Fortunately for dad Kurt and mom Katrien Above, there is still the Looise Zeepkistenrace. The proceeds of the second edition will go to the two boys. “It hurts that there is doubts as to our sincerity,” says Kurt.

The IPEX syndrome is a congenital abnormality in the immune system, which is difficult in gewonemensentaal is to explain. “In fact, it boils down to is that my sons very quickly have problems on thin and thick intestines, their stomach and their esophagus. They also suffer from lot of allergies. Their digestive system runs very difficult, with the result that Bass far below its weight”, explains Kurt. “Two children in the U.s. Atlanta are suffering from the same disease, but for the rest, there are worldwide no other cases known,” admits Kurt. “Because the syndrome is so rare, the treatment is also very difficult.”

Two kids in the American Context suffer from the same disease, but for the rest, there are worldwide no other cases known.

Kurt, dad Bas and Pim

Pim could this year, usually smooth to school, at Bas, there were more problems. “He is but a ten times a full day can go to school. Arranged to take advantage of our back to the wheelchair in the garage. A pity that the government has little to show understanding. For them, our sons are perfectly healthy. Nothing to do, but it hurts that they doubt our sincerity.”