Federal Council's consultant group with many representatives of the business discussed in a very controversial ideas: the erosion of privacy, and the free exchange of health data, lower health insurance premiums if you data. What do you think?
I find this discussion very disturbing. It seems to me that these people were not aware that you are talking about personality rights. These data belong to someone, namely the citizens and patients. The right to determine over their own data, you can't take that away from you. It is protected by the Constitution.
they criticize the increased use of data in health care?
Not basically. It is useful to use data more and better. It is done correctly, benefits the public through lower costs, better quality and more transparency. However, we need to find ways to conduct this research, without infringing the legal rights of the citizens to their data.
is this Happening today?
Yes. At the Moment, we have a huge imbalance. On the one hand, the authorities, such as the Federal office of public health; they have, thanks to new reporting obligations, a growing volume of data. On the other hand, there are Private, such as health insurance and many companies, which also collect data. In the middle of the Patient. Him the data. But since no one uses this claim, and by ensuring that the data will be used with his Knowledge and in his mind.
this Is a rather theoretical Problem?
on The contrary. We give our data is incredibly important information from the hands. Anyone who tells me that this Knowledge will eventually come back to me? At the Moment our company works according to the principle of solidarity. You don't know what Rucksäckli you are wearing. That could change. The insurer can create a very accurate risk profile of each Person. Also, currently, the research available to be used provided the data is neither in the sense of the common good nor effective.
you do research on the so-called General konsent. What is that, exactly?
A blank check for data, the service provider demand in the health care of patients.
A blank check for what?
This is precisely the question. It is in accordance with the law for the re-use of data for the purposes of medical research. But what is the General includes konsent exactly, so for what uses of their data, the citizens ' consent in fact is only very rudimentary. There is a lack of clear definitions. Hospitals this is of course. But the document is legally valid, would have to know the people and understand what it says. You'd have to train them. But no one makes. You just want to as quickly as possible to the data ran.
there Are citizen-friendly approaches?
A newer concept of dynamic consent. Instead of patients to allow uniquely the use of your data, there is here a dialogue between research and Patient. If there are new research projects, may choose the Patient case by case, whether to share their data, and can track who uses their data for what.
Sure, for the hospitals, it is much more practical, and the patients in hospital a paper entry to submit, together with a stack of other documents. But the dynamic consent shows how digitization could also be used to strengthen the rights of patients, without hindering the research unnecessarily.
What can make the research for the data?
is allowed If the citizen has given his consent, and he also understands, for what, basically, everything. The difficulty is in Switzerland is that our data protection law is outdated. There is a huge discrepancy between the law and the technical possibilities available today.
How this is manifested?
collected on the one Hand, data non-transparent and not used effectively. On the other hand, someone in Switzerland legally has little Chance to fight back, if he is the victim of a data breach. The EU has given the individuals with the data protection regulation will be significantly greater appeal in the Hand. Unfortunately, it is currently not clear to what extent the legal situation in Switzerland will continue to improve.
The Parliament advises, however, currently, the Revision of data protection law.
Yes, but the whole area of Big Data was virtually excluded. The industry and research. They are currently investing a lot of money and create the legal gray area of facts. You know that Parliament is not then in five years and says: Sorry, this and the not now. (Editorial Tamedia)
Created: 18.02.2019, at 14:05