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If even the raindrops when the needles feel: friends organize fundraiser for Bart (41)
Ingelmunster Bart Gevaert (41) suffers since two years with dunnevezelneuropathie (DVN), a rare muscle disease which the nerves are affected. So, we get to give pain and he had to work forced to terminate. To give him a heart under the belt to stick and a wheelchair to be able to buy, organize his friends on June 1, a benefit concert for him.

“I had a good job with a lot satisfaction as onderhoudsmecanicien”, says Bart story. “Unfortunately, I'm in there from one day to the other have to stop. On January 17, 2017 I was for my work on the move until I suddenly vibrations in my arms and legs felt. At first I thought to heart problems. As a baby I was after the birth only half a year in the hospital because I had open-heart surgery had to undergo and ten years ago I had a heart failure. The pain remained, however, but take time and also manifested itself in the neck and upper arms.”

53 peers

There followed two years of investigations and gnawing uncertainty. “The doctors could not find the right diagnosis until I was in november last year in the university hospitals of Leuven was told that the DVN is”, says Bart. “Apparently, but 53 on the 100,000 people who have muscle disease. For me, this was a double-time. Finally, I knew what I had, but the doctor said immediately that it has no cure and that I there my whole life it would contend.”

The disease damages the ends of nerves, which are responsible for matters such as sense of touch, temperatuurgevoel, but also sweat and the blood pressure. “Ninety percent of my body feels the consequences of it”, says Bart. “I now need a cane to walk or I would fall over and with my left eye, I see but very blurry. On other moments I'm able to after a certain action in a lot of pain in my arms, legs or neck. At a very bad time feel the raindrops on my skin even if needles. I am so often on my homebound, but I have little choice. I go once to the supermarket or to visit, then the chances are that afterwards, I pain have. “

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