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Born with the heart outside of the body: Now there is good news

The british pair of Naomi Findlay and Dean Wilkins did not live to enjoy their pregnancy for very long, before the joy was replaced with concern.

A scan at the ninth week showed that their upcoming baby's heart had begun to grow outside of the body. An extremely rare disease by the name of ectopia cordis.

the Doctors gave the couple's baby ten percent chance to survive, but Naomi and Dean believed in the miracle, and 22. november 2017 came Vanellope Hope to the world by caesarean section.

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a Few minutes after his birth, was Vanellope placed in a sterile plastic bag to keep her heart moist and reduce the risk of an infection. Photo: the Leicester hospital charity

this week ended 14 months of struggle, during which Vanellope has undergone three operations to get his heart back in the body. On Thursday, the family could finally leave Nottingham's Queen's Medical Centre.

It writes the BBC.

Vanellopes mother, Naomi, calling it a huge relief to finally be able to get his daughter home, though it is a little overwhelming for her and Dean.

- It is exciting, but it is also scary at the same time. It has been a long, emotional journey, tells Naomi to the BBC.

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Naomi and Dean has a few times had Vanellope with the home, but it has only been a small visit, before they have turned the snout back to the hospital. Photo: BEN BIRCHALL

She and Dean is not going to be completely alone to care for their daughter. According to Naomi, 'it's not over yet', and therefore, their daughter still being monitored day and night. And it is at night that they will get outside help to keep an eye out with Vanellopes health.

- There is still a lot, she must go through yet, but now she comes home, and it is the first step, says Dean Wilkins to the BBC.

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Vanellopes heart is today covered with her own skin after three operations. Photo: the Leicester hospital charity

Frances Bu'Lock, which is a part of the team that helped to care for Vanellope, telling that the baby at a later time will need something that can amplify her chest and make her condition more stable.

- We don't really know what's going to happen with her (Vanellope, ed.), for no one has ever dealt with this patienttype before. Therefore, we are going to keep an eye on her development, says Frances Bu'Lock to the BBC.

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